The Political Pendulum

Parents of Children With Disabilities Read This Before You Vote

Posted on: September 15, 2008

Message From The Beach Center, a prominent disability establisment (posted on another thread I read):

To the disability community in America: Be cautious.

 Governor Palin’s comments at her party’s convention bring to mind a famous line from Virgils Aeneid:  Timeo Danaos et donas ferentes: I fear the Greeks even when bearing gifts.

 

On the one hand, Gov. Palin appealed to the hopes and fears of people with disabilities and their families by proclaiming she will be their friend and advocate in Washington. 

 

On the other, she dismissed Sen. Obama’s experience as a community organizer. She asserted he bore no responsibility for his activities; she contrasted her roles as mayor and governor as freighted with responsibility. 

 

Gov. Palin;s promise has understandable allure for the disability community. But words take on authentic meaning when buttressed by biography.   

 

When a young man declines the pursuit of wealth to work with the far-from-wealthy, calling on them and their governments to be better, that man gives us reason to believe he means what he says and says what he means.

 

When a young governor line-item vetoes six appropriations for community disability services or for accessibility modifications to public accommodations, that governor gives us reason to be skeptical about promises and prospective performance.  When the appropriations totaled $749,000 in a state that has a huge budget surplus, and when the governor apparently knew at the time that her nephew has autism, that governor gives us special reason to doubt her commitment to people with special needs.   

 

Yes, state funding for intensive special needs children in Alaska increased for Fiscal Year 2010. But it is not yet clear exactly who those children are, how many of them are the intended beneficiaries of the appropriation, and precisely what role the governor had in proposing the appropriation or influencing the legislature to appropriate the funds. 

 

In a word, Gov. Palin’s record on disability leaves us with our doubts about her promise.

 

It also prompts us to concentrate on the governor’s dismissive mockery of community organizing and its portent for the disability community.  

 

The truth is that community organizing benefits people with disabilities. 

 

That is so historically.  Like every other parent of an infant, child, or adult with a disability, Sarah Palin should recognize that the benefits she, her son, and her family can claim as theirs flow directly from the community organizing that parents have been carrying out for more than 50 years.

 

And it will be so in the future.  It is inconceivable that parents and people with disabilities will ever find respite from creating new or better services and from advocating for progressive policies and practices.  We are certain of that fact.  It’s part of our history as parents of a man who is 41 and has intellectual disability, autism, and bi-polar disorder.

 

Community organizing has always been our lot. It always will be. 

 

To discount that fact and prospect is to disrespect, in the most profound of ways, the valor of the parents of the past, the parents of the present, and the parents of the future.  One wonders what Gov. Palin could possibly mean when she proclaims herself an advocate for people with disabilities in one breath and in another denigrates the organizing efforts of countless advocates who preceded her.

 

When Sen. Obama immersed himself in the communities on Chicago’s south-side, he contributed to people with disabilities and their families.  That is so because disability powerfully correlates with poverty, single-parent status, and ethnic minority status. 

 

Whatever he did to counter poverty, make lives safer, and improve public services, his action and that of those who followed him then and believe in him now enhanced the quality of life of people with disabilities and their families.

 

When Sarah Palin invokes her own biography, she invites us to say it is a shame, as in sadness, that she does not know her history.

 

She also invites us, we tired community organizers and national advocates to say, Shame on you for devaluing our contributions to yours and your sons future. 

 

The ultimate shame would be for the disability community and those with whom its cause resonates to vote on the basis of group membership only.

 

Words and consistent action have meaning; words that are inconsistent with action do not.   

Palin pales in comparison to Obama.  

Rud and Ann Turnbull

Lawrence, KS

9-11-08

 

The writers are Distinguished Professors in special education and life span studies at The University of Kansas, former officers and directors of The Arc of the United States, former presidents of the American Association on Intellectual and Developmental Disabilities, and recipients of an award from seven professional and parent associations recognizing them as two of the 36 people who changed the course of history in the 20th Century for people with intellectual and related disabilities.  Here’s the original post

 
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4 Responses to "Parents of Children With Disabilities Read This Before You Vote"

[…] *She has a five month old and I think it is great that she would advocate for him …This link begs to differ this claim though. Vetoed funding for special Olympics? “Has not been a strong voice for our cause”…. http://ap.google.com/article/ALeqM5jBnTwv5zwHprqcaX9lpeKgxf4M3QD932LS0O1 https://thepoliticalpendulum.wordpress.com/2008/09/15/parents-of-children-with-disabilities-read-this… […]

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Please lady give me a break. She is the first of my knowledge of a politician that has even mentioned disabled children as an issue. You should be grateful there is strong woman out there advocating for them. You bias to senator obama is strong and that is ok but do not dismiss her attempt to help those who do not have voices and not been heard. She has spoken when no other presidential candidate have. She a mother of a child with disabilities how dare you even question her intentions from a mother who knows what in the heart of a parent with a gifted child.

Tonya,
I am a mother of a child who lives with Epilepsy, so I know first hand the plight involved with special needs advocacy. I have fought hard for my daughters medical rights, educational rights, and to fight the stigmas that are attached to special needs children.

The letter I posted here was written by actual advocates for children with down syndrome. Their records speak for themselves if you care to look at the links below.

Rud Turnbull http://soe.ku.edu/sped/faculty_staff/RTurnbull.php
Ann Turnbull http://soe.ku.edu/sped/faculty_staff/ATurnbull.php

The Turnbulls are part of the beach center, which was created to help educate and advocate for children and parents of special needs.

A true advocate knows the importance of Community Organization, like that old proverb says “it takes a village to raise a child” it also take a village to advocate for special needs, community fundraising, awareness, etc. I haven’t seen a single picture of Sarah Palin at a walk for Autism, down syndrome, etc..

All I had was her record to go on and while it had some ups, unfortunately the downs outweighed them. I don’t know Sarah Palin, but I do know when it comes to the issues we’re polar opposites.

It is my personal opinion, that her plight for Energy Independance far out weighed her plight for special needs. Her talk of being an advocate for special needs in her debut speech at the RNC, although powerful, to me was merely pandering. Hopefully her actions over the next four years will prove me wrong and I will see her actively advocating for Special Needs, but thus far I have only heard her talk about building a pipeline.

Thanks for your comment.

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